Our Mission

Jack’s Butterflies’ mission is to foster an inclusive community allowing children with rare diseases (and their families) to have enriched, fully supported lives. Through government and community education and provision of support services, we will empower every person impacted by a rare disease to celebrate every precious moment.

Our Vision

Jack’s Butterflies’ Vision is to ensure that no family feels alone in their daily struggles to care for a child with a life limiting rare disease.

Our goal is to provide our Rare Disease Parents with assistance, education, training and support to empower their decision making.

We aim to enrich the lives of our families through various events throughout the year, thereby providing opportunities to meet other families in similar circumstances whilst building on their support networks.