Rare Kids of Australia
At Jack’s Butterflies we aim to be self sustaining and not having to rely on donations or sponsorships to cover our administration and staffing costs. Every dollar raised through fundraisers, donations and sponsorships all go towards providing
services to our Rare Families.
Care Packs
Care Packs
When Rare Families need a little helping hand, you can contact us and we can provide care packs to the parent and child in hospital as well as the family members at home.
Gatherings
Gatherings
All members of our Rare Families are important to us and we want to help strengthen their network by providing opportunities to meet other people traveling a similar journey.
Get Involved
Get Involved
Join Jack's Butterflies as a general member and use your skills to help us reach more Rare Families around Australia. Volunteer at fundraisers, run support groups, family events and more.
Social Groups
Social Groups
We hope to start these classes in 2022 that will be run by volunteers. The aim is to teach new skills or build on existing skills in a social setting and donating the final product to Rare Families.
Raising Awareness
Raising Awareness
We shine the spotlight on rare diseases and the families journey pre and post diagnosis.
Rare Registry
Rare Registry
Help us by registering your family and sharing details of your child with a rare disease. Our aim is to capture every person under the age of 18 years who has a rare disease diagnosis or is still undiagnosed.
