One of our aims is to ensure no family affected by a Rare Disease, ever feels alone with not only the daily struggles but also in times of emergency.

We don’t dictate what counts as an emergency, you do.

If you, or you know of someone who is going through a really hard time at the moment, please make contact with us.

This form goes direct to Rachel, our Founder and Managing Director
but if your situation is time sensitive,
please contact her direct on 0456 782 092.

The idea of Jack’s Butterflies first took flight through a personal understanding of the hardships, needs and wants of keeping a child alive and a family together.

Our aim is to respond to each request within 24 hours.
We cannot guarantee that we will be able to help with all
specific requests, but we will try our best.